By this time, we were giving Rhythm .3ml twice a day and .2ml once a day of Haleigh's Hope. Our options now were to work with the dosage and potentially the strength of the CBD Oil. The strength we were on was 20:1, which means a strain ratio of 20 CBD to 1 THC. It is a very low THC strain, which has allowed Haleigh's Hope to be a legal supplement that can be shipped to all 50 states. This particular ratio has been shown effective in treating anxiety, cerebral palsy, depression, and epilepsy. We had 2 other options for strain ratios - 15:1 and 10:1. In both cases, the CBD becomes less, so that did not seem like a viable option for us, as it was the CBD that was the effective element of the Haleigh's Hope treatment.
Then we found out something that had not occurred to us. We started to read about TOO MUCH CBD Oil bringing on myoclonic seizures in epilepsy patients. We were giving Rhythm a total of .8ml during the course of the day over three different intervals. We decided to pull back on the dosage we were giving her to see if that had an effect. Our new dosage would be .3ml in the morning and then .3ml in the evening. We had also ordered a multi-vitamin to start giving Rhythm as well. We did that because it was a standard need for any child, but because of Rhythm's eating patterns, we wanted to make sure she was getting the vitamins she needs.
Then it happened. They stopped. The seizures all stopped. The day after we started giving Rhythm the multi-vitamin along with the adjusted dosage of Haleigh's Hope, the seizures just stopped. We were stunned. We watched her closely, and there was no trace of the myoclonic seizures. Days and weeks passed, and no seizures. Along with that, we started to see better eye contact, significantly better head and neck control, and more courage to get into a crawling position. Was this combination of Haleigh's Hope and the multi-vitamin the answer?
A closer look at the multi-vitamin may give us some insight. Please take a minute to read this article on Vitamin B6. Although a deficiency of Vitamin B6 can be a cause of seizures, that has never been directly linked to Rhythm's case. However, the multi-vitamin we started giving her had 286% of the recommended dosage of B6 for a child Rhythm's age. Could it be that a lack of Vitamin B6, or depletion of that vitamin because of the seizures, be culprits in the continuation of her seizures up until this point?
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We have been diligently giving her the Haleigh's Hope and the multi-vitamin every day for over the last two months, and Rhythm has been seizure free that entire time. Was it a miracle? Was this the right combination we needed all along? Was this a coincidence? Will the seizures come back? We don't know the answers to any of these questions. All we know is that Rhythm has not had a seizure for over two months, and we don't ever want them to come back.
You are now caught up to Rhythm's story. Our journey to this point has been filled with devastation, hope, discovery, fear, anxiety and anguish. But no matter what, Rhythm has and will always have two parents and many family, friends and fans that will be giving her love, support and prayers. They will cheer every milestone in this long road ahead. And that's where we go next in this journey. Catching Rhythm up to all of the joy and wonder of simple things like crawling, walking and talking.
Thank you for following her story so far. Please share this blog with anyone you feel would be touched by this story or learn something that can help them in a situation they may be in with Epilepsy.
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